Getting Help

While complex regional pain syndrome (CRPS) is a mysterious and sometimes misdiagnosed disorder, there are doctors who understand and know how to treat it. This is most likely to happen if the doctor is board-certified in Pain Medicine by the American Board of Pain Medicine or holds a special certificate in Pain Management from the American Society of Anesthesiologists. Ideally, the doctor works in a recognized pain clinic that includes several types of treatment, but such clinics are not available in all areas of the country. Be aware that many doctors and other health-care practitioners call themselves pain specialists, but may not be as well trained or experienced in treating chronic pain conditions.

The important thing is to shop around – and get multiple consultations, if necessary – until you are completely satisfied that the health-care practitioner or facility can help you with your CRPS. Some questions to ask your doctor:

1. Do you believe the disorder exists?
2. How many cases of CRPS have you treated?
3. What are your special qualifications to treat CRPS patients?
4. What is your philosophy of CRPS management in terms of medications, other treatment options and complementary therapies?
5. What types of medications do you generally prescribe?
6. What types of non-drug therapies (including psychological and/or spiritual help) do you use?
7. Where do you refer patients who need additional treatment?
8. Is your clinic listed with any professional societies? (You can check this out yourself by going to the web pages of the professional societies listed on the NPF web site.)
9. Do you have seven-days-a-week, 24-hour coverage if I need help?

Here are some places and people that can help manage CRPS:

• Comprehensive Pain Centers. Such centers provide multi-modality, interdisciplinary treatment, but may not have CRPS programs or specialists. Be sure to check first.
• Pain Medicine Physicians. Pain medicine has become a medical specialty in recent years. Pain medicine physicians specialize in treating many different pain conditions. Depending on background and interest, many treat CRPS. However, inquire about their experience and interest in treating CRPS and whether they incorporate a variety of therapeutic (multi-modality) approaches.

Professional Groups

There are professional societies and health-related organizations that can help you locate health care professionals or facilities that are knowledgeable about CRPS management and treatment.

Pain-related

American Academy of Pain Medicine
4700 West Lake
Glenview, IL 60025
(847) 375-4731
Fax: (847) 375-6331
www.painmed.org

American Chronic Pain Association
Post Office Box 850
Rocklin, CA 95677
916-632-0922
www.theacpa.org

American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
(847) 375-4715
Fax: (877) 734-8758
info@ampainsoc.org
www.ampainsoc.org

American Society of Pain Management Nurses
7794 Grow Drive
Pensacola, FL 32514
888/34-ASPMN (342-7766)
Fax: (850) 484-8762
www.aspmn.org/

International Association for the Study of Pain
International Pain Foundation
909 NE 43rd Street, Suite 306
Seattle, WA 98105
(206) 547-6409
www.halcyon/iasp.com

Reflex Sympathetic Dystrophy Syndrome of America (RSDSA)
P.O. Box 502
Milford, CT 06460
(877) 662-7737
Fax: (203) 882-8362

E-mail: info@rsds.org
http://www.rsds.org/


Other health-related

American Society of Anesthesiologists
www.asahq.org

American Academy of Neurology
www.aan.com

American Academy of Physical Medicine and Rehabilitation
www.aapmr.org

American Medical Association
515 North State Street
Chicago, IL 60610
(312) 464-5000
www.ama-assn.org

American Psychological Association
750 First Street, NE
Washington, DC 20002-4242
(303) 336-5500
www.apa.org