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Complex Regional Pain Syndrome

American RSDHope Group
A national non-profit organization for survivors of RSD/chronic pain and their loved ones. Features information about signs, symptoms, stages, and coping, as well as sections for different age groups. Dedicated to promoting national awareness of RSDS/CRPS.

Disaboom
The first comprehensive, evolving source of information, insight, and personal engagement for the disability community.

For Grace     (818) 760-7635
An organization dedicated to raising awareness of Reflex Sympathetic Dystrophy, also known as Complex Regional Pain Syndrome.

Lehigh Valley RSD Support Group
The Lehigh Valley RSD/CRPS Friends of Hope Web page offers information and support for people afflicted with RSD/CRPS and post traumatic fibromyalgia.

Physicians for Patients
An online version of a physician mediated support group for patients, families and friends of those with complex regional pain syndrome.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)      (877) 662-7737
Raising awareness of Complex Regional Pain Syndrome (CRPS) and Reflex Sympathetic Dystrophy (RSD) since 1984. The RSDSA has Complex Regional Pain Syndrome Treatment Guidelines available on its site at http://rsds.org/3/clinical_guidelines/index.html.

Rocky Mountain RSD/CRPS     (303) 918-9385
We are devoted to helping those with RSD as well as family members of RSD patients.

Books


Beyond Illness by Larry Dossey.
The Pain Cure: The Proven Medical Program that Helps End Your Chronic Pain by Dharma Singh Khalsa and Cameron Stauth
How Then Shall We Live? by Wayne Muller
Love, Medicine, and Miracles by Bernie Siegel
Spontaneous Healing by Andrew Weil
Why People Don’t Heal and How They Can by Caroline Myss

The following articles and textbooks are written primarily for health-care professionals, but contain valuable information about CRPS and general pain management.

  • Classification of Chronic Pain: Description of Chronic Pain Syndromes and Definition of Pain Terms, Merskey, H.; Bogduk, N., IASP Press; Seattle; 40-43; 1994.
  • Classification of Chronic Pain: Pain Syndromes and Definition of Pain Terms. Second Edition; Editors Merskey, H., Bogduk, N.; Seattle: IASP Press; 1996.
  • “Consensus Report: Complex Regional Pain Syndromes: Guidelines for Therapy,” Clinical Journal of Pain; Stanton-Hicks, M.; Baron, R., et al.; 14: 155-66; 1998.
  • Handbook of Neurology, “The Autonomic Nervous System and Pain,” Schwartzman, R.J., Editor; Vinken, P.J.; Bruyn, G.W.; Appenzeller, O.; 1999.
  • “Intraspinal Opioid Therapy for Chronic Nonmalignant Pain: Current Practice and Clinical Guidelines,” Journal of Pain Symptom Management; Krames, E.; 11: 333-352; 1996.
  • ”Nerve Blocks in the Evaluation of Chronic Pain: A Plea for Caution in Their Use and interpretation,” journal: Anesthesiology; Raja, S.; 86:4-6; 1997.
  • “Neural Blockade for Diagnosis and Prognosis,” journal: Anesthesiology; Hogan, E; Quin, H.; Abram, S.;1997; 86:216-241.
  • “New Treatments for Reflex Sympathetic Dystrophy,” New England Journal of Medicine; Schwartzman, R.J.; 343:684-86; 2000.
  • Physicians’ Desk Reference, 55th Edition, Medical Economics/Thomson Health Care, 2001, www.pdr.net.
  • “Psychological Differences Between Reflex Sympathetic Dystrophy and Non-RSD Chronic Pain Patients,” journal: Pain; Bruehl, S.; Husfeldt, B., et al.; 67:107-114; 1996.
  • “Psychological Dysfunction in Patients with Reflex Sympathetic Dystrophy,” journal: Pain; Ciconne, D.; Bandilla, E.; Wu, W.; 71:323-33; 1997.
  • “Reflex Sympathetic Dystrophy: Changing Concepts and Taxonomy,” journal: Pain; Stanton-Hicks, M.; Janig, W.; Hassenbursch, S., et al.; 63: 127-33; 1995.
  • Regional Anesthesia and Pain Medicine, Sympathetic Nerve blocks: In Search of a Role, Boas, R.; 23:292-305; 1998.
  • “Stress infrared telethermography is Used in the Diagnosis of Complex Regional Pain Syndrome, Type I,” journal: Clinical Journal of Pain; Gulevich, S.J., Conwell, T.D., Lane, J., et l.; 13:50-59;1997.
  • “Sympathectomy for Reflex Sympathetic Dystrophy: Factors Affecting Outcome.” Journal: Annuals of Vascular Surgery; Abu Rahma, A.; Robinson, P., et al., 8:372-379; 1994.
  • “The Movement Disorder of Reflex Sympathetic Dystrophy,” journal: Neurology; Schwartzman, R.J., et al; 40:57-61; 1990.
  • Three Patterns of Spread in Complex Regional Pain Syndrome, Type I (RSD), American Pain Society, 17th Annual Meeting; Maleki, J.; Bennet, G.; LeBel, A.; Schwartzman, R.; November 5 – 8, 1998.
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